Showing posts with label Healthy. Show all posts
Showing posts with label Healthy. Show all posts

Tuesday, 16 May 2017

Everything You Need To Know About Type One Diabetes

*As always, by reading any copyright content on this blog you are agreeing to the terms and conditions stated here. Do remember all content is based on my personal experience only and is not intended as medical advice.*

It never fails to baffle me just how little people know about Type One Diabetes, so I guessed a quick-one-stop-shop for everything you need to know about T1D, whether you're an employer, friend, family member, partner or just nosy, may be of some use to direct people.

So here it is, your quick guide if you know a person living with Diabetes and want to clue yourself up. Read below some short, simple statements in attempt to answer your questions and cover the basics.


What is Diabetes?

Insulin injection pens, needle and blood glucose meter

Type One Diabetes is an autoimmune condition where the pancreas stops producing a hormone called insulin. Insulin is used by the body to turn food into energy, which your body then uses as fuel so you can go about your normal day. Insulin keeps your blood glucose levels in range so you can function and perform everyday activities. 
People with type one diabetes need to manually input insulin into their body every day by using insulin injections or an insulin pump and have to monitor their blood glucose levels using a blood glucose meter. They have to take a dose of insulin every time they eat.
Insulin Pump

Type Two Diabetes, is substantially different, and develops when the body cannot produce enough insulin or for whatever reason, the insulin that is produced doesn't work properly. Type two diabetes can be treated with lifestyle changes, diet and medication. 
People living with T2D may be moved to insulin injections in some circumstances.


What does living with type one diabetes mean?

Each time a person with Diabetes eats they need to take a dose of insulin. This is calculated manually by a ratio agreed with their medical team. People with Diabetes can eat whatever they want, as long as they calculate the carbohydrate content in every meal, snack or sugary drink.

After a diagnosis of type one diabetes you need to ensure your blood glucose levels are at a safe level so you can go about your usual activities. As those with diabetes are replacing what is an automatic function from a healthy organ in a non-diabetics body, the room for error with insulin doses and meals is increased. This means we can have high blood sugar (HYPERGLYCEMIA), when there is too much glucose in our body, or low blood sugar (HYPOGLYCEMIA) , when there is not enough glucose in our body. Each are treated differently.

Symptoms of  high blood sugar include but are not limited to:

  • Extreme Thirst
  • Tiredness
  • Irritable

High blood sugars usually require what is called a 'correction insulin dose', this is usually a small amount of insulin to bring down your blood glucose level into a safe range. Drinking fluids may also be used to re-hydrate the body.

Symptoms of low blood sugar include but are not limited to:

  • Shaking
  • Slurred Speech
  • Confusion


Low blood sugars require fast acting glucose, like Lucozade, to stabilise the blood glucose level into a safe range. People experiencing a low blood sugar may need 15-20 minutes in a quiet room to treat their levels.


Will I ever need to ring 999?

There is two circumstances where you may need to ring the emergency services. 

1. If a low blood sugar becomes so low that the person with diabetes cannot give themselves fast acting glucose. If blood glucose levels drop too low the individual will have a hypoglycemic fit, because the brain is starved of glucose, and in turn cannot function properly. 
The general rule is if the person becomes unresponsive, call an ambulance.

2. If a high blood sugar goes too high, the glucose in the blood will turn acidic and may lead to a fatal condition called DIABETIC KETOACIDOSIS. If you are aware the person with Diabetes has a high blood sugar, and cannot keep food or liquids down, they need to go to hospital. 
Once admitted through A&E, they will be treated with IV insulin and fluids to re-hydrate the body.

Anything else?

Most importantly, having type one diabetes is not a label, and it does not stop you from doing anything.

Tuesday, 3 January 2017

Freestyle Libre - 7 Months On

An arty shot, if you will.
If you are new to The Freestyle Libre you can read about my first impressions and discover the initial problems I faced here. With that aside, I am here to share you where I am, 7 months on, the advantages, disadvantages and my tips if you are thinking about investing in this technology. Which for the record, is very expensive.

I would like to point out here that I do not fault the company, or their product in the slightest, in fact it's quite the opposite. I truly believe the Freestyle Libre Flash Glucose Monitor is a game-changer for many people with Diabetes. As always, my mutterings here on Diabetesgeek are purely my experience alone, you may feel different and that's awesome too.

Months 1-1.8 (Yes I did just do that)
I was swept off my feet and very much enchanted with my new found freedom when I first got my hands on my Libre. You can read a poem I wrote  about how I felt about Libs, a friendly nickname I gave to my handset, we were a great pair for a while. On our first day I learnt the importance of pre-blousing.. I now shout about this to all of my new diabuddies! It was something I was always told to do as a kiddiwink but never did, I learnt very quickly with the Freestyle Libre that spikes are hard to ignore (understatement of the century on my part).
You'll have noticed by now that I am writing in past tense, of which I feel bad.. I still love this technology. I just wish my brain wasn't wired into overdrive. I jumped into using the Libre with little idea of how it would affect my mental health, which ended up turning into a big black hole. I hope some of you planning on buying the Freestyle Libre system take my experience on board. I learnt the hard way, and I write in hopes others don't have to. 

Months 2-5
By the end of my second month using the Libre continuously* I began running into a few problems, which I blogged about (linked at the top of this piece.) In short, I was seeing data I didn't like and I wasn't sure how to cope with it, so I did as any other would, I carried on using the Libre and in turn was overwhelmed with data. I was putting in all the effort and not seeing the results I wanted or deserved. This cycle carried on for months which led me to my longest Burnout period to date- a hellish 3 months, from September right through to December. In that time my mental health turned to shit, my blood glucose levels were fluctuating more than I had ever known and I felt awful. At no point did I completely stop testing my bloods or stop taking insulin, thankfully I've not done that since I was about 8.

I didn't help myself either, which is important to point out here, I lost contact with my diabetic team for several reasons, I hope to blog about it one day. I wanted no input from health care professionals.. I was frustrated, in every sense of the word.
Frustrated this expensive technology seemed nothing but a horrible experience, frustrated that I couldn't handle this by myself, frustrated that I had to reach out for help and frustrated with, what felt like, lack of solutions.
A huge lesson I have learnt retrospectively is this, if you are going to invest in this tech, please please please work in partnership with your HCPs. For your safety, to preserve any blood glucose control you think you have and to keep everyone in the loop, use all the resources you have. Whilst in my 3 months of burnout I fell into some pretty bad habits, most of which I don't feel comfortable enough to talk about on here yet, which could have seriously damaged my health, so please, just keep yourself safe. 


*we shall speak more about this later.

Months 6-7
I began to take breaks between sensors, almost giving myself some kind of messed-up respite from what was supposed to be this grand piece of technology. I found returning to finger-pricks made me feel more free than the Libre did, which is the opposite of what you expect when you first research the tech. Finger-pricking broke me from this cycle of what felt like never ending misery and shitty data. Shitty data I didn't know how to handle. It went from finger prick snapshots which were never awful, to 24 hour graphs of my blood glucose, I saw every missed unit of insulin, every messed-up correction dose and every over-treated hypo. It drove me to the point of insanity. I literally felt like I was on the verge of a mental meltdown, which looking back on it now, was exactly where I was at in my 3 month period of burnout. I'm not sure if my blood glucose levels are genuinely better when finger-pricking, or if I just don't test when I know I've only just eaten and my bloods are bound to be higher than I'd like. Whichever it is, either is better than the crap I was seeing on my daily graphs, sometimes ignorance is bliss.

Moreover, *I felt bad each day I didn't wear a Libre sensor, because my parents were forking out such a lot of money for it, I almost felt obliged to wear them. Listen to your body, you know it better than anyone else ever will.

Luckily, in December I had the opportunity to complete a 'carb counting education course' through my hospital, another topic I plan to blog about in the near future, so many topics, so little time! On said course, HCPs advised I seriously re-considered using the Freestyle Libre because of the unhealthy habits I'd adopted. I think that was the point where I realised my eating habits had become, to put it politely, screwed. I learnt so much invaluable information whilst on the course but mainly that a lot of others get overwhelmed by the data that us T1's are so immersed in, especially when you're not sure what to do with the information you've collated. So I took the advice given, and since I have stuck to finger-pricking alone and have never felt better. 

That is not to say I won't ever use the Libre again, I hope be in a place mentally, where I can make the most of this fabulous technology. I didn't use it under the best of circumstances, given I was not in contact with my HCPs which I do not recommend (another understatement). I had issues with my target range, that's another topic for another day as well as trying to change my diet to avoid spikes, all of which I could have resolved if I was in contact with my team at the hospital. Communication is key, especially when it comes to your everyday health.
I still have two sensors to use, but I will be scanning with one eye shut. I still feel so blessed that my parents are in a position to fund this technology for me. When used correctly, and in partnership with your health care professionals, the Freestyle Libre is a game-changer for most. This attitude I still very much believe in.


To summarise, my Top Tips are as follows..


- I mentioned it earlier, but I'm going to say it again.  If you are going to invest in this technology, please please please work in partnership with your HCPs. They can help you, and if they are not familiar with the Freestyle Libre software, teach them or find someone that can.

Image result for you know yourself better than anyone else quote
A note from me, to you. - A
- You don't have to wear the Libre sensors all the time. Don't feel obliged to wear them just because you are fortunate enough that you can afford them. Order the starter kit, use the first two sensors and test the waters, so to speak. Be sensible, you know your body better than anybody else does.

- Take breaks between sensors. If just for a couple of days, let your brain rest from the constant stream of data. Returning to finger-pricks is not all as bad or as hard work as it seems.

- You're doing great.


If you read to the end of this post then have my many congratulations because I've quite literally written an essay, but as always, even if this just helps one person and they find they can relate, then my time spent brain-farting on a keyboard was completely worth it. Thank you for reading!

Amber xx

Twitter: @diabetes_geek 

Monday, 14 November 2016

World Diabetes Day 2016 - Thank You

I feel hesitant to blog today since there has been such a fantastic offering to the diabetes blogging world this past month, but at the same time it would have been wrong of me, as an advocate, to let this opportunity slip away.

Today I feel blessed. I feel grateful. I feel privileged, I feel lucky and most importantly I feel humbled.

The 14th November is marked each year as World Diabetes Day. It is the anniversary for Frederick Banting's birthday (125th this year) who was a Canadian man that was the first to use insulin on humans. The man I owe my entire life to, so thank you, Dr Banting for that little discovery you made.
Ultimately I would like to thank our wonderful NHS for ensuring I have my medical supplies, family and friends and the incredible Diabetes charities, Diabetes UK and JDRF, for the research they continue to do. Last but not least are the lovely people living with Diabetes. This is our day, and may we shout it from the rooftops with joy, pride and happiness. I have Type One Diabetes and I am proud to stand amongst you.
World Diabetes Day is about raising awareness, in any way that you can.

24/7. 365 days. No annual leave

Today is one of the rare occasions that I feel lucky to have Diabetes - I know that sounds crazy but bare with me. Look at all it has given me; resilience, strength, a social media and traditional media platform and voice, friends, confidence and passion.
I am the luckiest girl in the world.

My entire day has been filled with nothing but positivity, and heck do I feel lucky to be able to be part of that. The Diabetes Online Community (DOC) has been holding tweet chats the entire day, advocates being interviewed both for online articles and radio segments and blogs released from a multitude of people with diabetes. It is so rare that such a large volume of people come together to celebrate the same cause, a silver lining to the roller-coaster that is Diabetes. Turning what is more often than not, a negative into a positive is an incredible thing to do.


I was lucky enough to be asked to team up with BBC Newsbeat to raise awareness of the daily struggles that Type One Diabetes brings, you can read the article here. I feel privileged to be given a traditional media platform to dance upon the stage. I also had segments on BBC Radio 1 over the course of the day. I am proud of my blog, which has been running for just 9 months with 41 published posts!


I am going to finish this years World Diabetes Day by going to see the Spinnaker Tower lit up blue to commemorate this special day. Portsmouth is my home town so I am excited that they are getting involved and raising awareness for a condition, so explicitly close to my heart. I feel quite emotional actually, watching a community of people from all over the world come together is powerful and that should never be underestimated.


Doing what I love the most
Happy Diabetes Day, whether you are a person living with Diabetes or not, please help us share our message all year round. (For the meantime I'll just keep blogging..)

Sencirely, thank you.

Amber xx

Thursday, 30 June 2016

Exclusive UK Launch - LibreLink App

LibreLink in the Google Play Store
EXCITING NEWS! 

Abbott has teamed up with AirStrip Technologies to bring us PWD an app for Android phones (with NFC capabilities) all of the data, available on the current handset, and more, when scanning our Libre sensor with our phones! Amazing, right?